听说老天爷关上一扇门，就会打开一扇窗。折翅的小天使有着与生俱来顽强的生命力，小小年纪历经磨难仍不泯乐观温良的天性。今天， 七岁的小蛋儿，在妈妈的悉心养育下，是个很棒的二年级小学生。和很多同龄的孩子一样，他喜欢上学，看书，玩电脑，户外远动；极富幽默感又心地善良的他拥有众多的朋友；他聪慧好学， 虽然先天的身体条件和额外理疗安排让他的生活日程比他的朋友们都辛苦忙碌一些，可是他都快乐面对，有着和他年龄不相符的勇敢和坚韧。七年来，母子相依，击败无数挑战， 才有了小蛋今天的生活状态，可是，这并不是完结，而是面对更多更大的挑战。。。。不久的将来，已知的手术包括：
• 至少三个面部整容手术 （重建外耳，耳道，下颌修复）。每次术后还要有数月的家中理疗。
虽说命运让强者愈强，苦苦独立支撑七年的竹，终于选择在今天让我们了解他们母子的境遇，原因如上所述只有一个： 为了不放弃小蛋能像正常人生活的梦想, 而她已经无力独立支付上述这些更昂贵的手术治疗费用。其实，这个七年后才在朋友圈子传起来的故事，不再只有令人唏嘘的悲情，更多的是让人肃然起敬的感叹。帮助他们仿佛就是帮助我们成为更美好的自己。是的，他们母子正在创造生命的某种奇迹，带给我们的震撼，足以励志! 折翅的小天使在等待修复他逐梦的翅膀。读到此处的你，也许心有所触，愿意献出一份爱心。无论如何， 感谢你的关注，祝福你安康幸福！
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Anderson was born in August 2006 six weeks ahead of the due date via unscheduled C-section. He only weighed 5 lbs. The news awaiting his mother when she’d wake up from sedation wasn’t something any mother would’ve expected. Baby Anderson had been diagnosed with congenital abnormalities, the so called “Goldenhar syndrome” and “Klippel-feil syndrome”, in addition to congenital heart diseases, kidney and spine malformation, as well as hemifacial microsomia with one missing ear. The news hit his mom Judy like a brick wall. Tears flooded her eyes and down her cheeks. Her physical pain was numbed by the acute emotional agony as she wondered if her son would survive or ever have a chance to live a normal life.
Anderson was transferred to another hospital within 2 hours after birth to the level III Neonatal ICU. He was kept there for 2 months to get ready for the heart surgery. Judy was in another hospital, bombarded with more bad news. She was experiencing medical complications herself but she managed to talk to the doctors about Anderson’s situation every day….
It turned out Judy’s condition was life threatening since she had big clots in the lung (“Pulmonary Embolism”). After her persistent complaint of chest pain, her doctor finally agreed to prescribe a CT scan before releasing her. Judy was transferred to the cardiac ICU on the 4th day of her hospital stay. For the first time in her life, she felt life was too hard and lost the will to live. She could not move, and worse yet could not see her son. Her tears dried up and she couldn’t fall asleep day or night… Until a week later when she finally saw her baby, the precious boy who was hooked to so many medical devices and whose survival depended on his mother’s love and strength. Judy realized at that moment that no matter how hard it would get, she’d have to pull it through for her son. He became her strength!
In the next seven months, Judy took Anderson to see more than 10 specialists. He had open-heart surgery at the age of 5 months. Judy’s heart broke when the nurse took baby Anderson away from her and walked towards the OR door. Anderson looked at mommy with the most beautiful smile she had ever seen. Judy held her tears and smiled back at her fragile but strong baby boy. She collapsed the second Anderson disappeared from her sight.
Every second after that was like eternity. After the surgery, Anderson had to stay in the Heart ICU for another ten days. Each new day was a day of despair and hope, tears and joy, exhaustion and reenergizing, death and rebirth … When Anderson was in the hospital, Judy ran between home and hospital, getting no more than 2-3 hours sleep at night, while trying to hold onto a full time job…
Today at the age of seven, Anderson is a thriving second grader. He likes school, loves playing with his friends, reading books and playing computer games. Anderson came into our lives three years ago when he and Jake attended the same pre-school. The boys became buddies and had many play dates.
More corrective surgeries are awaiting Anderson in the years ahead:
- Installation of pacemaker to help his Progressive Bradycardia condition. His heart rate goes down to 20s at night and up to only 50s during the day.
- Pulmonary valve repair or replacement surgery (open heart)
- Bone grafting surgery to reduce the significance of scoliosis, which will be performed at mid to late stage of puberty year.
- Three craniofacial surgeries (reconstructions of outer ear and outer ear canal; corrective jaw surgery) followed by months of in-home post-surgery therapies.
- Lifetime hearing aids or preferably hearing aid surgery
Medical insurance doesn’t cover most of these surgeries. Being the single mother who has sole custody of Anderson, Judy is working hard to come up with the funds to pay for the procedures in order to improve the quality of life for her son.
Together we can mend the broken wings of this little angel so that he can fly as high as he wants.